I came to a coffee shop this morning to get some homework done, yet here I am...blogging. I think it's about time that I write something on here anyways.
It has been just over a week since I found out that I need more chemotherapy than originally planned, plus adding another kind, and then hearing the news that at the end of these 16 rounds–it still might not be enough, which is where a bone marrow transplant would be in the talks again.
How do you plan for life beyond cancer when the journey just keeps getting longer and longer? How do I trust Him that this won't be the one road I walk on the rest of my life?
I feel like I am stuck in this little room with a window. This window feels like it is stopping me from planning ahead. It is stopping me from thinking that there is even a life to plan for beyond this all.
Most days, the sun is shining through the window, but many days a thick fog rolls in and blocks the sun and blocks my view of life outside of cancer.
This fog represents my days of questions and doubts.
This fog represents my pain and discomfort.
This fog represents my confusion.
The question, "Why?" is asked more throughout my day than any other question, but I need to remember His answer to that question is probably something beyond my earthly comprehension; that I can't smell the color nine.
I can't expect Him to answer...in fact I can't expect Him to do anything. I can't put my hope in any kind of answered or unanswered prayer. My hope has to be put in Jesus Christ; that He was, He is, He will always be.
My hope has to be put in the fact that the fog isn't going to last long before the sun start shining through the thick darkness. HE is going to shine through.
He is near in the shouts and sorrow and pain. His promise is still true. I have made you. I will carry you; I will sustain you and I will rescue you (Isaiah 46:4).
So regardless of my questions and doubts. My pain and discomfort. My confusion. He is the answer. He is the hope. He is everything.
I need to grasp tight to this truth when the fog rolls in because it is a chance to know Him in the suffering. He has forever changed me, and I need to celebrate that.
Celebrate the depth the question "why?" has created in my faith.
Celebrate the times when the sun shines through the fog.
Celebrate Him and how He has never left my side and never will.
There is a life beyond the window....there is a life beyond cancer.
Tuesday, December 3, 2013
Tuesday, November 5, 2013
I Finally Miss It...
Although the ongoing joke is that #baldissexy and the list of why 'bald is better' continues to grow...it hasn't been until recently that I realized how much I miss my hair.
I mean, sure...there are SO many things that I love about not having hair. And I am completely serious about that. I don't miss my hair shedding on everything, especially my clothes. I love the extra time I get to sleep because I know my showers are quick, and I don't have to factor in the time it takes to do my hair. I find the feeling of the water pressure in the shower on my bald head to be like therapy. Plus... it is so much easier throwing on a hat!
But the thing that has most triggered my want for hair was getting ready for a wedding this last weekend. People were using curling irons all around me. Trying to figure out if they wanted to wear their hair up or down. Bobby pins, hair spray, braids, hair ties, hair dryers.
All of these things make me miss the feeling of femininity. I miss having to make the decision of curly or straight. I miss running my fingers through my hair in the shower. I miss braids and bobby pins and hair dryers.
And all of these things make me want this cancer journey to be over that much sooner. It has been almost 19 months since I was originally diagnosed, yet it feels like 5 years.
I don't even remember what it feels like to not have cancer anymore.
People ask me how I am feeling, and I almost always respond pretty good or fine. But that is because the constant nausea and extreme fatigue have become normal to me. If I am not feeling those things, I feel like something is wrong.
Healthy feels like lightyears away.
I am heading into round 8 of chemo this week, and more than anything... I wish it were my last. As of now, we have chemo planned out until December 6th (10th round), but I have scans in a couple weeks that will determine if the minimum 10 rounds is going to be enough. I pray and plead to God that it is.
And if it isn't...the only thing I can do is keep getting out of bed, keep choosing joy, and keep trusting God...
All while continuing to wake up and throw on a hat.
I mean, sure...there are SO many things that I love about not having hair. And I am completely serious about that. I don't miss my hair shedding on everything, especially my clothes. I love the extra time I get to sleep because I know my showers are quick, and I don't have to factor in the time it takes to do my hair. I find the feeling of the water pressure in the shower on my bald head to be like therapy. Plus... it is so much easier throwing on a hat!
But the thing that has most triggered my want for hair was getting ready for a wedding this last weekend. People were using curling irons all around me. Trying to figure out if they wanted to wear their hair up or down. Bobby pins, hair spray, braids, hair ties, hair dryers.
All of these things make me miss the feeling of femininity. I miss having to make the decision of curly or straight. I miss running my fingers through my hair in the shower. I miss braids and bobby pins and hair dryers.
And all of these things make me want this cancer journey to be over that much sooner. It has been almost 19 months since I was originally diagnosed, yet it feels like 5 years.
I don't even remember what it feels like to not have cancer anymore.
People ask me how I am feeling, and I almost always respond pretty good or fine. But that is because the constant nausea and extreme fatigue have become normal to me. If I am not feeling those things, I feel like something is wrong.
Healthy feels like lightyears away.
I am heading into round 8 of chemo this week, and more than anything... I wish it were my last. As of now, we have chemo planned out until December 6th (10th round), but I have scans in a couple weeks that will determine if the minimum 10 rounds is going to be enough. I pray and plead to God that it is.
And if it isn't...the only thing I can do is keep getting out of bed, keep choosing joy, and keep trusting God...
All while continuing to wake up and throw on a hat.
Saturday, September 21, 2013
Cancer and College: It's hard work!
Staying in college while battling cancer is hard work.
We are only coming up on the 4th week, and I have already had many times that I felt like I was in way over my head, but then I also couldn't imagine not having work to keep my mind off things.
I am currently only taking 12 credits (four classes) and am not at a social work internship placement this semester. Which means I have 3 classes on Tu/Th and don't have classes on Mondays or Fridays, with only 1 night class on Wednesday
I do have some advice for fellow George Fox-ers though... Please don't tell me that you are jealous of my schedule. I know that you have not meant that statement in any demeaning way, but you do realize the reason my schedule is set up like that is because I have have cancer, right?
Sure, I have less classes than you.
Sure, I have less homework than you.
But I have a lot less more energy and time to do it than you.
I sit at the hospital every other Friday for anywhere from 5-10 hours doing chemotherapy, which is followed by 3-5 days of being unable to eat anything or get out of bed or off the couch.
This isn't directed at any one person because I have heard it many, many times from several different people. I know that no one's intentions are in the wrong place, but that is probably one thing I have had a hard time hearing...
I would gladly trade someone for their 16 credits, internship, and job for 12 credits and cancer. Any takers? ;)
Well now that I have that off my chest...
As you all know, we have set up our Etsy store and that has been taking off well! And most recently, we have started an EFF Cancer Movement facebook page! Now that has REALLY blown up! It has been just barely over 24 hours and we only need a little less than 150 more likes to reach a thousand!
I honestly could not be more blessed by the support of all of you in making this movement continue to spread! The money from these shirts are going straight to helping subsidize the medicals bills that I have piling up, and has made things a lot easier for me!
I have had a lot of hard days lately with just being exhausted and wanting this all to be over. I have been battling cancer for quite some time now, and it really does start to take a toll on me emotionally, physically, and spiritually.
I had someone the other day message me asking how I can still believe in a God that gave me cancer.
I know that God is not the one who gave me cancer because the God that I know cares for me and loves me. He weeps alongside of me, and holds my hand while I walk through this.
I continue to trust in Him and refuse to worry for He is my Strength and my Song. Because He is my Strength, He empowers me to handle every task as it comes. Because He is my Song, He gives me joy as I work alongside Him.
I know that He has a vision for my life, whether that is here on this Earth or in Heaven. He wants me safe and held, and I trust that His plan for my life is much greater than I could ever imagine.
So today, as I sit here still unsure of what this journey holds for me, I put my trust in Jesus, and promise to always give Him glory. Because this story of mine is not a testament of my own strength. It is a story that testifies God's strength given to those who need it and ask.
We are only coming up on the 4th week, and I have already had many times that I felt like I was in way over my head, but then I also couldn't imagine not having work to keep my mind off things.
I am currently only taking 12 credits (four classes) and am not at a social work internship placement this semester. Which means I have 3 classes on Tu/Th and don't have classes on Mondays or Fridays, with only 1 night class on Wednesday
I do have some advice for fellow George Fox-ers though... Please don't tell me that you are jealous of my schedule. I know that you have not meant that statement in any demeaning way, but you do realize the reason my schedule is set up like that is because I have have cancer, right?
Sure, I have less classes than you.
Sure, I have less homework than you.
But I have a lot less more energy and time to do it than you.
I sit at the hospital every other Friday for anywhere from 5-10 hours doing chemotherapy, which is followed by 3-5 days of being unable to eat anything or get out of bed or off the couch.
This isn't directed at any one person because I have heard it many, many times from several different people. I know that no one's intentions are in the wrong place, but that is probably one thing I have had a hard time hearing...
I would gladly trade someone for their 16 credits, internship, and job for 12 credits and cancer. Any takers? ;)
Well now that I have that off my chest...
As you all know, we have set up our Etsy store and that has been taking off well! And most recently, we have started an EFF Cancer Movement facebook page! Now that has REALLY blown up! It has been just barely over 24 hours and we only need a little less than 150 more likes to reach a thousand!
I honestly could not be more blessed by the support of all of you in making this movement continue to spread! The money from these shirts are going straight to helping subsidize the medicals bills that I have piling up, and has made things a lot easier for me!
I have had a lot of hard days lately with just being exhausted and wanting this all to be over. I have been battling cancer for quite some time now, and it really does start to take a toll on me emotionally, physically, and spiritually.
I had someone the other day message me asking how I can still believe in a God that gave me cancer.
I know that God is not the one who gave me cancer because the God that I know cares for me and loves me. He weeps alongside of me, and holds my hand while I walk through this.
I continue to trust in Him and refuse to worry for He is my Strength and my Song. Because He is my Strength, He empowers me to handle every task as it comes. Because He is my Song, He gives me joy as I work alongside Him.
I know that He has a vision for my life, whether that is here on this Earth or in Heaven. He wants me safe and held, and I trust that His plan for my life is much greater than I could ever imagine.
So today, as I sit here still unsure of what this journey holds for me, I put my trust in Jesus, and promise to always give Him glory. Because this story of mine is not a testament of my own strength. It is a story that testifies God's strength given to those who need it and ask.
Sunday, September 1, 2013
Shaving Heads and Eff Cancer
Wow, it has been awhile since I have posted on my blog, but I wanted to thank you all for your continued love and support! As this cancer journey continues to be a rough one, I have been extremely blessed to have the support of my friends and family during this all.
For a short little update, I just finished my 4th round of chemo last week and have upcoming scans later this week. Be praying that this treatment is showing improvement! I will also be starting school this upcoming Tuesday, so another prayer request is for an unfathomable amount of energy to be able to continue going to classes, doing treatment, and just enjoying life as a college student. I have recently moved into a new house (many people have been asking about this), that was just a deal that I would be a fool not to take. The house is owned by two of my good friends, and living here will be a "safe haven" for me, as well as take some stress off my back financially.
Another thing that you might have missed somehow... I shaved my head right before my hair started falling out. And in order to make this be a milestone in my journey that I will remember... I had a party!! My friend Megan documented it all and made this beautiful video that you should check out!!
But in fun, big news regarding the #effcancermovement2013 that I shared about in a past post...We jumped from sales of the original 20 shirts to 440 sold shirts in just 4 months! These shirts have mainly just been spread by word of mouth through facebook, instagram, conversations when wearing it, etc.
This has shot way past what we could have ever imagined to happen with these shirts, but we are extremely grateful for all those who have helped us out in getting here.
That being said....
I am extremely excited to announce the opening of our Eff Cancer Etsy shop!!!
We decided that we wanted to take it up a step in sales in a more sustainable way, and an Etsy shop seemed like the perfect idea! (we already feel less stressed!)
Something we have realized is that everyone has been affected by cancer in some way, and these t-shirts are a great way to show their support. We are happy to supply the shirts whether or not they are specifically buying one to support me, or if it is for someone they know and love.
For a short little update, I just finished my 4th round of chemo last week and have upcoming scans later this week. Be praying that this treatment is showing improvement! I will also be starting school this upcoming Tuesday, so another prayer request is for an unfathomable amount of energy to be able to continue going to classes, doing treatment, and just enjoying life as a college student. I have recently moved into a new house (many people have been asking about this), that was just a deal that I would be a fool not to take. The house is owned by two of my good friends, and living here will be a "safe haven" for me, as well as take some stress off my back financially.
Another thing that you might have missed somehow... I shaved my head right before my hair started falling out. And in order to make this be a milestone in my journey that I will remember... I had a party!! My friend Megan documented it all and made this beautiful video that you should check out!!
But in fun, big news regarding the #effcancermovement2013 that I shared about in a past post...We jumped from sales of the original 20 shirts to 440 sold shirts in just 4 months! These shirts have mainly just been spread by word of mouth through facebook, instagram, conversations when wearing it, etc.
This has shot way past what we could have ever imagined to happen with these shirts, but we are extremely grateful for all those who have helped us out in getting here.
That being said....
I am extremely excited to announce the opening of our Eff Cancer Etsy shop!!!
We decided that we wanted to take it up a step in sales in a more sustainable way, and an Etsy shop seemed like the perfect idea! (we already feel less stressed!)
Something we have realized is that everyone has been affected by cancer in some way, and these t-shirts are a great way to show their support. We are happy to supply the shirts whether or not they are specifically buying one to support me, or if it is for someone they know and love.
The majority of the profit still goes towards helping me with my growing medical expenses as I continue treatments and all the little things continue to add up.
So please! Join the movement! Spread the word about our shop!
(I even added a little Etsy Badge at the top of my right side toolbar that goes directly to the Etsy account!)
We also have another fun something related to the #effcancermovement2013 that will happen at the beginning of October, so be watching for it!
Thank you all for your continued prayers. They truly mean a lot.
Tuesday, July 16, 2013
Some Updates. Some Thoughts.
It's been awhile since I have wrote on here.
Mainly because I don't know where to start.
As many of you know, I changed to a more aggressive treatment plan at the beginning of July. This decision was unplanned and quick. After talking to a friend of mine about my doctor's treatment plans for me, she asked if I would consider getting a second opinion from her doctor. And within 2 days, I got that second opinion. The treatment I was doing before was proving not to be successful, so we decided to cut out a couple steps in my actual plan to get where I am now.
I started a chemotherapy known as R-CHOP. I go in once every two weeks for a long 8 hours. Once we do several rounds of this, we will do scans to see if there is any progress. If there is, then praise the Lord that we have found something that is working! If not, we will begin our preparations for a bone marrow transplant.
This new chemo has proven to definitely be more aggressive. After my first round, I slept for an uncountable amount of hours during the three days following, and had a hard time eating anything but mashed potatoes for 2 weeks. I just had my second round yesterday, and some things are opposite! Some good news is that we found a nausea med that is working better than others, but it is $150 a pill! The doctors have been kind enough to keep giving me "samples" of this med, which has allowed me to feel a bit better than before.
As for the opposite side effect though, I am beginning to experience insomnia. Last night I slept from about 10pm-12am and then 2am-4am. And I have now been awake ever since other than some extremely short cat naps here and there. My body is aching with exhaustion.
When I woke up for the third time at 4am, I was exhausted and upset. I wanted to sleep. It was so silent and I laid there in the dark and soon began crying. Before I was so upset that I was always sleeping, and now I am upset that I can't sleep!
Although not sleeping is definitely not ideal, I can't help but be thankful for the time I got to spend in solitude with Christ. After realizing that I wasn't going to fall asleep, I turned on some worship.
Through lyrics, I was reminded that He promises us that we are not alone.
He is there to bring healing to the hurting.
He is there to bring comfort to the worried.
He is there to turn my mourning into dancing.
As I spring forward to what tomorrow holds for me, I was reminded that although I may be weak, His Spirit is strong in me. And although my flesh my fail, He never will.
Tomorrow evening I will be getting branded by the "cancer stamp" if you will. Because my hair has continually starting thinning a lot more than usual and today my head has started feeling a bit tingly, I will be shaving my head.
I have avoided thinking/talking about it because although I have been battling cancer on and off for a year and a half now, I have not had to deal with people knowing unless I told them.
With a picc line in my arm, and no hair on my head... I won't have to tell anyone. This is a big step in my journey and I am blessed to have a huge group of people to be here to join me in making this a milestone in my journey.
I am nervous and definitely not looking forward to tomorrow, but I continue to tell myself these four things.
1. God is good.
2. I am not alone in this.
3. This is another step to health.
4. #baldissexy
Mainly because I don't know where to start.
As many of you know, I changed to a more aggressive treatment plan at the beginning of July. This decision was unplanned and quick. After talking to a friend of mine about my doctor's treatment plans for me, she asked if I would consider getting a second opinion from her doctor. And within 2 days, I got that second opinion. The treatment I was doing before was proving not to be successful, so we decided to cut out a couple steps in my actual plan to get where I am now.
I started a chemotherapy known as R-CHOP. I go in once every two weeks for a long 8 hours. Once we do several rounds of this, we will do scans to see if there is any progress. If there is, then praise the Lord that we have found something that is working! If not, we will begin our preparations for a bone marrow transplant.
This new chemo has proven to definitely be more aggressive. After my first round, I slept for an uncountable amount of hours during the three days following, and had a hard time eating anything but mashed potatoes for 2 weeks. I just had my second round yesterday, and some things are opposite! Some good news is that we found a nausea med that is working better than others, but it is $150 a pill! The doctors have been kind enough to keep giving me "samples" of this med, which has allowed me to feel a bit better than before.
As for the opposite side effect though, I am beginning to experience insomnia. Last night I slept from about 10pm-12am and then 2am-4am. And I have now been awake ever since other than some extremely short cat naps here and there. My body is aching with exhaustion.
When I woke up for the third time at 4am, I was exhausted and upset. I wanted to sleep. It was so silent and I laid there in the dark and soon began crying. Before I was so upset that I was always sleeping, and now I am upset that I can't sleep!
Although not sleeping is definitely not ideal, I can't help but be thankful for the time I got to spend in solitude with Christ. After realizing that I wasn't going to fall asleep, I turned on some worship.
Through lyrics, I was reminded that He promises us that we are not alone.
He is there to bring healing to the hurting.
He is there to bring comfort to the worried.
He is there to turn my mourning into dancing.
As I spring forward to what tomorrow holds for me, I was reminded that although I may be weak, His Spirit is strong in me. And although my flesh my fail, He never will.
Tomorrow evening I will be getting branded by the "cancer stamp" if you will. Because my hair has continually starting thinning a lot more than usual and today my head has started feeling a bit tingly, I will be shaving my head.
I have avoided thinking/talking about it because although I have been battling cancer on and off for a year and a half now, I have not had to deal with people knowing unless I told them.
With a picc line in my arm, and no hair on my head... I won't have to tell anyone. This is a big step in my journey and I am blessed to have a huge group of people to be here to join me in making this a milestone in my journey.
I am nervous and definitely not looking forward to tomorrow, but I continue to tell myself these four things.
1. God is good.
2. I am not alone in this.
3. This is another step to health.
4. #baldissexy
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